My name is Summer and I am dying… It took me a long time to get a grip over this fact but now I have and it doesn’t hurt as much anymore. Five years ago, I got diagnosed with Meningioma which is a brain tumor. I was only twenty six. It turned out, the severe morning headaches and visual disturbances which I had attributed to migraines, were due to a tumor in my brain. My life ended and began on the day I got diagnosed. I remember the doctor saying “there is hope”, the prognosis was good and “most” people had a good chance of survival. I kept it a secret from my two best friends- Kit and Sam. The oncologist had said I had a good chance of surviving, so I thought, why worry them. I had planned on revealing my diagnosis to them after the treatment began, but then, somewhere along the line, something changed.
A few months into treatment (which was really hard to keep a secret from my prodding best friend Kit), more tests and scans were performed to check the progress of the tumor. It wasn’t good. The treatment wasn’t working, the tumor was steadily growing bigger and basically- I was among the unlucky few.
The doctor explained to me in the most basic of terms, saying, they had to change treatment methods due to the increase in growth of the tumor. More “aggressive” tactics had to be employed which meant more and worse side-effects. He didn’t add that part, but experience taught me. Severe abdominal pain, nausea- and a whole lot of other life- inconveniencing pain.
I knew I had to tell Sam and Kit because either way, sooner or later, they would find out. Weight loss, mood swings and especially sudden vomiting weren’t things that could be easily hidden. Or even, a patch of “no hair” in the head due to biopsy- that hurt me a lot because I love my hair. And then, Sam broke the news that he and Julie were getting married and I thought it best not to disrupt their happiness and be the bringer of bad news.
But the truth was, that was just an excuse. I was scared, petrified, and in an emotional roller coaster. I had seen what cancer had done to my mother, and even though I knew I wasn’t her, thinking back to the pity state she was in, the “poor thing” look people gave her, I didn’t want that. I didn’t want to be reminded every single day that I was a walking time bomb who could pass out, flare up or even leave at any moment. It is in human nature for us to feel sorry for our fellow humans when they are going through a rough patch. I get it, but at the same time, I didn’t want that.
I wanted to leave the image of a lively good old Summer, the girl who believed the world was her oyster, who loved her friends beyond the moon, who was happy despite hidden wounds. I wanted people to remember me as “the real me” and not the cancerous version of me. At times, I felt so mad that I could curse “cancer” itself, whatever it is. But it is still me. This cancer is part of me, it is formed from my cells, my genes!
And then there was the secret I was harboring. I love Sam. It did take me a while to understand the feeling, but I did. I was in love with Sam and I knew it. But, oh the cliché of life- he was getting married to someone else. He was getting married to Julie. If only she was a wacky piece of junk, but she wasn’t. Julie was a perfect lady who I knew would do anything for Sam. She truly loved him, it was evident from the way her eyes lighted when he spoke, her ears perked up to his voice and her cheeks still flushed at the talk of Sam. I wasn’t one to break a love like that. Not especially considering it would be a miracle if I made it through half a decade.
And so, I took what some people would call “the easy path” but in reality, it was the hardest decision I ever made. I walked away from everything and everyone. I was tired, frustrated and a bit confused. I needed space, a new environment to clear my head and a miracle to destroy the cancer within me. The first was easier and so I left. It hurt at first to think that my friends would never know the true reason as to my departure. But at the same time, I know if I could go back In time, I wouldn’t change a thing.
When I first left, I was angry. Then depression kicked in. After a while and a lot of therapy, I decided- “what the heck?!” Now is all I have. I can’t even count the number of times I have had to change treatments, all in the hope of prolonging my time on here. That was all we (my treatment team) could do- prolong my time a little bit. The illusion of destroying the cancer departed us after the first few years.
I am not as strong as I used to be. I see clearly only with the use of medicated lenses. The headaches are abominable, my cramps have gotten a whole lot worse. My weight dropped significantly within the first two years of treatment and well, I am proudly bald. But it hasn’t been all bad. In between hospitalizations, I got the chance to see the world. New places, new experience, new cultures and the chance to view life from a different perspective. The perspective of a person with limited time on earth.
5 years, tops. That was my prognosis. But, here i am. Going not so strong, but still alive. Though not for long anymore. Recently, all the procedures have yielded negative results. I am tired of being experimented upon; the pain and discomfort that comes with chemo. As if the cancer itself is not enough to deal with. So, I quit the new experimental treatment. I haven’t given up on myself yet, never. I’m still going to fight this “thing” within me to my very last breath. But at the same time, I want to live out my remaining moments, my way, with the people I love.
I have grown and learned more in the past few years than in all of my 26 years. I have learnt to appreciate this life for all of its worth. Some after their diagnosis, they get a few months, some a year or two; I have been blessed to live for over five years now. I have seen as people who I went through treatment with lost the battle, yet here I stand. And now, there’s only one thing left to do.
Many don’t get to say their goodbyes. I have been blessed with the opportunity to and I’m taking it.
I’m going home.
*clicks off video recorder*
Wow! You added a whole new dimension to this story. I always thought the reason Sam left was because she was in love with Sam and it hurt too much to see him wed Julie. I know that is in there, but she had deeper reasons. I think this piece is so much stronger than the others! Summer has a powerful voice and it is true and feels richer than the others. Well done! I trust we are going to be able to read the going home part? 😉
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Thank you so much! Yeah, this was a slightly nerve wrecking one for me. Trying to make the post length long and also creating Summer’s character. I really appreciate the comment and thank you for following. About the going home part, you’ll have to wait and see 😉
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Powerful sharing.
warmly, marcy
http://LivinglyDying.com/
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You left me almost speechless! I didn’t expect this! Way to go! Having this piece all centered on Summer and written from her perspective has been amazing. I loved the ending, but yet didn’t like it, for I want to read the Homecoming part NOW 🙂 So yes there better be a homecoming part!! You can’t let your readers down 🙂 Great job!
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Haha, thank you Joy! I figured, who better than Summer to tell Summer’s story. I guess there’s going to have to be a homecoming part now ;).
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Excellent! I can’t wait to read more….:)
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Thanks priceless!
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Nice kaygy!
this story is full of emotions. I just can’t wait to read more:)
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Thank you very much 🙂
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Wow. This really hit me because I have a friend with similar cancer. She’s 27. I think you did a great job capturing the essence of her mindset. Great job!
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I’m so sorry about your friend. Wishing her all the very best. And thank you so much, my! It wasn’t easy 😉
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Omg!! Your story is a movie like faults in the stars .. I can only wish you good luck and wish i could meet you.. you are amazing☺
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Thank you so much for such great compliment!! Aww, really, i appreciate it 🙂
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Incredible! Well written, full of emotion. The case of Ivan Noble, a British journalist who suffered from similar brain tumour flashes before me as I read this… will be back for the homecoming
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Thank you so much for reading, will be expecting you :). I didnt know about the journalist, going to read about him. Could do with the inspiration, thanks.
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No worries. The reason I followed Ivan Noble journals was because his condition was very similar to my brother’s. This was in 2005, he really helped me to put a closure on sad situation that people around me blamed on the witch. He did a very detailed journals of his condition from day 1 to the end – bless his soul. Also in the process, he enlightened so many people in the process.
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I just read about Ivan and my! I’m still feeling a bit emotional. So sorry about your brother, he had cancer too? Yeah, we Nigerians have a bad habit of ascribing every single thing to bad omen. This year, I’ve seen 3 experiences ascribed to black magic. Prior to researching for this story, I didn’t know about giloblastoma too. I can see what an inspirational journey Ivan put out.
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Thank you. Yes, something feasted on his brain, I made my peace with giloblastoma. Too sudden, only two weeks, didnt get to say goodbye. You can see why Ivan’s life lasted that long – British superb health care. Very kind of him enlightening the world.
Glad you find time to read him.
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This was, by far, your best episode on Summer. Great job!!
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Oh my! Thank you so much. I hope I can beat that with the next part! 🙂
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This story just keeps unfolding in front of my eyes and I’ve got to be honest: I love it! It just gets better every single time! Well done! 🙂
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Awww, thank you soooo much! Your comments are my driving force. Really, I appreciate it. 🙂
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Gosh I rbought this was real. I’ve only just started reading this and getting to know your blog. A silly question how on earth can you make it feel so real do you know someone close who talked about how it was / is? Xx
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Aww, thank you very much. Looking forward to our blogging journey together 😉 . Hahaha, it’s totally a legit question. Actually, I just wrote it. Tried my best to put myself In the shoes of a cancer patient, and I guess I just wrote. Your emotion after reading this was what I was going for, yay!! 😀 I’m glad.
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wow, i cant even imagine trying to do that, kudos to you hehe xx
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